These are just a few suggestions–feel free to do what you want to do to increase awareness and understanding during Autoinflammatory Awareness Month!
Please watch our official International Autoinflammatory Awareness Month video and share it widely to raise awareness, understanding and hope!
The official video with Spanish Subtitles is at this link. The official video with Ukrainian Subtitles is at this link.
2025-Celebrating 10 years of International Autoinflammatory Awareness Month!
Watch the programs with expert doctors and patient advocates from various parts of the world, and patient organizations speaking on autoinflammatory diseases from our past patient programs.
Visit our events page to find out about all the programs and gatherings at major landmarks being lit up orange for International Autoinflammatory Awareness Month, and find out how you can get involved wherever you are in the world.
Share Your Story-Help Raise Awareness!
For International Autoinflammatory Awareness Month, we want to hear from you to help us increase understanding for autoinflammatory diseases. Please upload a short video, written story or recording to answer this question: What would your current self tell your past self (or other patients) about what has helped you live and cope with an autoinflammatory disease?
Share your story here: https://tallulah.ai/form/538416a5-7957-4d20-a81b-853ae2bdde10 This is an initiative of the Autoinflammatory Alliance.
Please upload a short video, written story or recording to answer this question: What does autoinflammatory research mean to me? Please share your story, and why more research funding is needed. Share your story here: https://tallulah.ai/form/d51b5726-517d-4c5f-b034-626517333666 (More story requests will be posted in the next few days.) This is an initiative of the Autoinflammatory Alliance.
Unmask Autoinflammatory Diseases Campaign
Stop FMF has collaborated with Sobi Spain and FEDER for an exiting awareness Campaign for 2025 to help “Unmask Autoinflammatory Diseases.” Please watch the video below, and visit this page to download and print the mask, and take a photo to share on social media. The goal is to raise awareness of the challenges for patients with autoinflammatory diseases. Some people are sharing the mask image on their phones in front of their face to join in the campaign from anywhere!
Share your photos online, and hashtag them with #DesenmascaraLasAutoinflamatorias
#agostomesdelasautoinflamatorias #autoinflammatoryawareness and share them with Stop FMF on facebook to add to the growing collection of photos.
Our friends at The Flying Lifeguards made this clever Autoinflammatory Bingo card for International Autoinflammatory Awareness Month a prior year, and this year, we are inviting anyone interested to download the bingo card, mark all the spots that apply to you or your loved one (note that the quoted texts are for things that people may have said), and share it on our Facebook page, and upload it with your contact info to get a little prize pack mailed to you!. Fill in this form to enter your Bingo card to get a prize pack.
Download the BINGO CARD below:
Watch the Saturday, August 24th, 2024 program, with expert autoinflammatory doctors and others that was translated in many languages. This zoom program is complete, with closed captioning in English for viewing now at this link. The zoom globe gives you the translated files, but the first 13 minutes of translation may not be there, which we have in another format to share when we post the videos on youtube later.
Re-watch the Saturday, August 26, 2023 program. Here is the zoom recording. Click on the Globe in the zoom recording to get the translation recording that is built in by the translators this year for the languages you want to hear!
Watch the August 27, 2022 program at this link.
Link to to watch the August 7, 2021 patient program is here, with closed captioning.
Link to watch the August 28, 2021 patient program is here, with closed captioning.
Visit the Monkey & Bear Etsy shop to get all sorts of fun t shirts and gear-or ask to have items customized for your needs. Jessy is donating a generous amount of funds from all sales to support Autoinflammatory Awareness Month events, and Rare Disease Day.
Enjoy these short videos featuring the building lightings around the world for International Autoinflammatory Awareness Month from 2021 for inspiration:
Kansas City, MO at Union Station, and Children’s Mercy hospital.
Building lightings in various locations in Barcelona, Spain and elsewhere in Spain.
Video from the “Shine a Light for Autoinflammatory Diseases” campaign submitted by patients and medical professionals worldwide, sharing their messages to increase awareness and support to others globally.
The “We are More” video features patients doing things that they love, and can do, thanks to being diagnosed and on beneficial treatments, and is very inspiring.
If you have a just few minutes to raise awareness:
Update your social media frame to show your support for International Autoinflammatory Awareness Month. (Go to our Downloads page to learn more, and find other graphics that you can use on social media too.
–Go to this page to ger ready to “Shine a Light for Autoinflammatory Diseases” and help share awareness wherever you are!
-Post anything you find interesting on our Facebook or Twitter Autoinflammatory Awareness Month pages to raise awareness to your social circles, and use the #shine4autoinflammatory hashtag, or ad some others listed below.
–Download and print out some of our awareness graphics and take a photo with glow, candles or lights and your message in a photo, or up to 10 seconds of video and post it onto social media and upload your photos or videos to our secure dropbox by August 15th so we can put them in our awareness month social media and our closing ceremony on August 27. Please use the #shine4autoinflammatory hashtag too.
Hashtags to use:
#shine4autoinflammatory
#autoinflammatory
#august4autoinflammatory
#autoinflammatoryawareness
#hope4SAID (SAID means “systemic autoinflammatory disease”)
#morethanafever
#notjustafever
Or come up with your own! Please share it with us too-it is fun to see the creativity in our patient community.
You can request buildings to be lit up orange in August for International Autoinflammatory Awareness month in your area. Here is a template example for an email or letter. On our events page, you can see where buildings will be lit in the world, especially in Valencia, Spain this year.
-Send us a message in our Contact Us page to sign up for updates for the month.
Make sure to also show your support your favorite autoinflammatory and/or rare disease charities!
-Visit their site, and social media sites to get involved, and learn more about their initiatives.
If you have less than an hour:
-Contact your elected officials and share with them about the need to support research for rare autoinflammatory diseases, improve access to treatments, and genetic testing and share your story about life with an autoinflammatory disease (or that of a loved one.)
For more suggestions on how to reach out to elected officials in the US, visit this page.
-Reach out to a friend or family member that has an autoinflammatory disease, and ask them about it, and what they would like you to know about life with an autoinflammatory disease.
More than an hour:
-Write, or make some art or other item that helps you to express life with an autoinflammatory disease, and share it with friends, family or online.
Learn more about autoinflammatory diseases by visiting these sites:
–PRINTO introduction to autoinflammatory diseases, and disease-specific information for patients and caregivers (available in many languages.)
-International Society of Systemic Auto-inflammatory Diseases (ISSAID) resources for medical professionals, and also a growing list of resources for patients and caregivers here.
–Autoinflammatory Boot Camp video series on youtube, taken from the 2nd NIH-WRNMMC Autoinflammatatory and Immunedysregulatory Symposium from 2019
–Periodicfevers.com is a family-friendly site with info, and even online storybooks for kids.
–saidsupport.org “Where to Start” for learning about autoinflammatory diseases (periodic fever syndromes) and also read about how these diseases are different from autoimmune diseases here.
–autoinflammatorydiseases.org also features talks from the 2018 Boston Children’s Autoinflammatory Disease Lifestyle and Wellness Patient workshop.
–autoinflammatory-search.org Medical search database to compare autoinflammatory diseases (with rash images-medically edited and geared to those with medical terminology).
-Attend one of the virtual events online in honor of Autoinflammatory Awareness Month.
-If you have a favorite autoinflammatory disease charity, and want to make a donation or do a fundraiser during Autoinflammatory Awareness Month, that would be greatly appreciated!
-Visit our friends at The Flying Lifeguards on Facebook to share some of their adorable graphics and memes, and awareness graphics on social media that are dedicated to Autoinflammatory Disease Awareness.